SIBS - Blogger

Fw: Fwd: UPS for DownS Soeren Palumbo speech

2011-11-28T13:21:00.001-08:00

Sent from Yahoo! Mail on Android From: Cathy Christensen ;

The Importance of Sibling Perspectives and Experiences

2011-06-23T13:59:00.000-07:00

The Importance of Sibling Perspectives and ExperiencesTime: Tuesday, July 5, from 2:00 to 3:00 PM ESTSpeaker: Mr. John Kramer, Sibling Leadership NetworkSpace is limited.Reserve your seat now at: https://cc.readytalk.com/r/jjgr2fc6ozmvThe Autism NOW Center is a project funded by the Administration on Developmental Disabilities and a national initiative of The Arc. The Center gathers, organizes,

Supporting Siblings of People with Disabilities

2010-08-13T13:52:00.001-07:00

Where to hear a Special Needs Legal & Future Planning presentation by Brian Rubin… Brian Rubin has been lecturing on the topic of Special Needs Legal & Future Planning since 1982... since his own son with special needs was one year old. For more information and/or to arrange for a presentation for your group or organization on the topic

Chicago area adult sibling get together.

2008-11-10T10:50:00.001-08:00

Please see message below and forward on to any other adult siblings that you may know. Tara Kosieniak www.sibsnetwork.org Sibling resources: http://groups.yahoo.com/group/AdultSibsNet/ http://sibleadership.blogspot.com/http://sibsnetwork.blogspot.com/ --- On Sun, 11/9/08, Yoda84@aol.com wrote: From: Yoda84@aol.com Subject: [AdultSibsNet] Chicago area Save the

10/15/2008 Announcement from the SLN: Sibling Leadership Network White Papers Now Available Online!

2008-10-15T12:35:00.001-07:00

Forwarded on behalf of Don Meyer and the Sibling Leadership Network: Since last year’s meeting in DC, members of the Sibling Leadership Network have been hard at work on position papers addressing Research, Policy and Advocacy, and Services and Supports. Please download and read the final drafts of the White Papers by visiting this link: http://www.siblingsupport.org/

2008/09 ILLINOIS LEND PROGRAM TRAINING ANNOUNCEMENT

2008-10-15T10:46:00.001-07:00

2008/09 ILLINOIS LEND PROGRAM TRAINING ANNOUNCEMENT: An Opportunity forFuture Leaders Serving Children with Developmental Disabilities The Institute on Disability and Human Development at UIC is excited toannounce 15 new LEND training opportunities open to graduate students fromthe following disciplines: (1) Child Psychiatry, (2) Disability Studies, (3)Nursing, (4) Nutrition, (5)

SLN White Paper

2008-10-13T13:50:00.001-07:00

To: Sibling Leadership Network (SLN) members and supportersYou are invited to the 2nd annual conference of the Sibling LeadershipNetwork on November 6th & 7th in Columbus, OH. For more information and toregister, visit www.siblingsupport.org . We are excited to share the draft of the white paper (a white paper is areport or guide that addresses an issue and

Legislative forum

2008-09-19T09:11:00.001-07:00

I am encouraging as many families to attend this as they can!! Saturday, September 20th, 2008Orland Park Civic Center 14750 S. Ravinia Avenue, Orland Park > > (One Block West of La Grange Road at 147th) > > 12:30 pm to 3:30 pm> > Doors open at noon. > > > > > > EVERYBODY WELCOME, persons with disabilities of all kinds, their> families, friends, advocates, community leaders, services providers,>

What Kind of Advocacy Do Americans with Disabilities Really Need?

2008-09-18T16:52:00.000-07:00

What Kind of Advocacy Do Americans with Disabilities Really Need? By Paul K. Longmore Ever since Sarah Palin’s acceptance speech, the “needs” of children with disabilities have gotten a lot of press. Palin pledged to be a “friend and advocate” for those children. News stories have reported the excitement of parents and other people in the disability rights constituency that disability issues

Moving out of a state institution

2008-09-01T07:54:00.000-07:00

From the Chicago Tribune, an interesting article about an adult woman who recently moved from Howe into a group home. It's this kind of story that makes me wonder how sibs can help change the system in IL. Tara and I recently attended a meeting about changing the whole system in IL. Here's the article:A home that healsAfter years in a state institution, a woman with autism finds a better

Sibling Leadership Network 2008 Conference Update

2008-08-26T10:13:00.001-07:00

Register Now for the 2nd Annual Meeting of the Sibling Leadership Network! November 6 & 7, 2008, Columbus OhioLast year's conference in DC was an amazing event and this one will be as well! Sibling Leadership Network meetings are a remarkable opportunity to connect with adult sibs (and others committed to issues important to sibs) from around the US and beyond. Speakers include Jeff and

Save the Date! The 2nd Annual Sibling Leadership Network Meeting

2008-07-10T10:31:00.000-07:00

SAVE THE DATE! The 2nd Annual Meeting of The Sibling Leadership NetworkNovember 6-7, 2008 Columbus, OhioMarriott Airport HotelConnect with others who have a sibling with a disability--and share your knowledge and experience! With presentations, workshops, and breakouts by: • Jeff and Cindy Daly (directors of the film Where?s Molly)• Dean Fadel (lobbyist extraordinaire) • Tom Fish (OhioSIBS and

H.R. 5873

2008-05-07T13:36:00.001-07:00

-- Please sign on in support of Family Leave Insurance Act! Dear Friends, Representatives Pete Stark, Carolyn Maloney, George Miller, and Lynn Woolsey have introduced a new, comprehensive paid leave program: H.R. 5873, The Family Leave Insurance Act of 2008. Please join us in supporting the bill by signing on to the letter of support. The legislation is similar to the bill introduced in the

Barbara Walters - as a Sib

2008-05-02T07:36:00.001-07:00

NEW YORK ‹ After three decades of keeping mum, Barbara Walters is disclosing a past affair with married U.S. Senator Edward Brooke, whom she remembers as "exciting" and "brilliant." Appearing on "The Oprah Winfrey Show" scheduled to air Tuesday, Walters shares details of her relationship with Brooke that lasted several years in the 1970s, according to a transcript of the show provided to The

waiting for services

2008-04-26T09:02:00.001-07:00

PLEASE HELP US OUT BY FORWARDING THIS EMAIL ON TO OTHER INTERESTED PERSONS AND POSTING IT ON APPROPRIATE LISTSERVS (INCLUDING THIS NOTICE) HUNDREDS OF THOUSANDS OF INDIVIDUALS WITH DEVELOPMENTAL DISABILITIES ARE WAITING FOR SERVICES Hundreds of thousand of children and adults with developmental disabilities are sitting at home with aging parents and guardians, losing

Worrying About All Services - Chicago N

2008-04-22T19:48:00.001-07:00

Family Support Network Members: It’s always so surprising to hear that you have been seriously misinterpreted or misunderstood. And that is what I discovered today. I learned today that “some folks” believe that I believe that the State of Illinois should increase enrollment in the Home-Based Support Services Programs at the expense of new enrollment in Community Integrated Living

Arc & Corrected Date for Park Ridge Hearing

2008-04-15T11:07:00.001-07:00

Leaders in The Arc: The email I sent you yesterday on the Legislative Hearing on Autism in Park Ridge had the wrong day. The hearing will be held Tuesday, April 22, 2008 not Monday as previously sent. See the corrected memo that follows: Tony The Arc of Illinois April 15, 2008 Leaders in The Arc: Rep Rosemary Mulligan is holding a Legislative Hearing focusing on Autism, Tuesday, April 22,

Access Living Calendar

2008-04-11T21:12:00.001-07:00

April 12, 12 p.m. to 2 p.m. Disability Pride Parade Planning Meeting. This is your chance to get involved with the planning of the 5th Anniversary Disability Pride Parade, scheduled for July 26, 2008. For more information, contact Janice at 312-640-2195 (voice), 312-640-2102 (TTY). April 15, 10 a.m. to 12 p.m. Housing Support Group. This monthly meeting offers people with disabilities

Fwd: FW: RE: sibling program

2008-04-08T12:00:00.001-07:00

begin:vcard n:Rolland;Carol fn:Carol Rolland, PhD tel;work:773 297-7340 org:Advocate Illinois Masonic Medical Center; version:2.1 email;internet:Carol.Rolland@advocatehealth.com title:Director, Developmental Pediatric Services end:vcard FYI All, Please see the attached message. Our Sibshop will be aired on NBC on Wednesday, April 9 at the 5 am and 5 pm newscast. I believe this will go

SPREAD THE WORD - Siblings step up to care for each other

2008-04-07T09:28:00.001-07:00

This is from Appleton WI. I thought you'd be interested in this article in today's Post-Crescent. (go to link below) The story of these siblings is truly inspiring. To view the contents on www.postcrescent.com, go to: http://www.postcrescent.com/apps/pbcs.dll/article?AID=/200804070422/APC0101/804070455 NEW DEVELOPMENT! You'll note that the article states that Rachel Simon will be the

State of the States- IL

2008-03-31T16:26:00.001-07:00

FYI-FROM THE STATE OF THE STATES IN DEVELOPMENTAL DISABILITIES (2008)Distributed in collaboration with The American Association onIntellectual & Developmental Disabilities (AAIDD){The complete 309 document is available for purchase from AAIDDhttps://www.cu.edu/ColemanInstitute/stateofthestates/}Supported in part by theUnited States Department of Health & Family ServicesILLINOISRanks 51st (50th

Catch Nora on the Radio

2008-03-30T12:58:00.001-07:00

Good afternoon everyone- In case you missed it, Nora was on Disability Beat (a radio show out of Champaign). It’s very good! http://www.disabilitybeat.com/MP3s/norahandler.mp3 Thanks Nora! Best, -- -John Kramer

National Conversation on Advising Self-Advocacy Groups

2008-03-28T11:48:00.000-07:00

PLEASE DO NOT RESPOND TO THIS EMAIL. If you’d like to contact us, visit our website www.theriotrocks.org and click on “Send us your comments.” Greetings Readers! This is your last chance to sign up for our April 7th National Conversation on Advising Self-Advocacy Groups teleconference! The deadline for our April teleconference is March 31st! Though you will still be able to sign up for our

Job Opportunity! Enthusiastic Advocate Desired!!

2008-03-28T11:38:00.001-07:00

Job Opportunity! Enthusiastic Advocate Desired!! The Family Support Network is seeking to fill the position of “Chicagoland Advocacy Coordinator”. This position is designed to be part-time, working about 20 flexible hours a week from a home office. Applications are now being taken. Our new Chicagoland Advocacy Coordinator must be an energetic, creative person committed to the philosophy of

Supporting Illinois Brothers and Sisters Friday Update

2008-03-28T10:07:00.000-07:00

Happy Friday everyone- I just wanted to update you on a few things that have been going on for S.I.B.S. We’ve been actively trying to promote our presence on the web and make it easier than ever for siblings to connect with each other in IL. In this election year, we need to find our voice as siblings and get informed on policy issues that affect us and our siblings. To do this, we are

Rally Day in the Capitol!

2008-03-27T11:22:00.001-07:00

Rally Day at the Capitol!!The Family Support Network ~ The Arc of Illinois ~ Autism SpeaksGiant Steps ~ The Autism Society of Illinois ~ IADD-PACGreetings Fellow Advocates!Here's the update we promised. More details are on the FSN website at:http://www.familysupportnetwork.org/2008%20Disabilities%20Rally%20Day%20Letter.docbillion, 295 million). Our proposal would increase the Governor'sbudget

Your Tax Dollars At Work!

2008-03-25T15:13:00.001-07:00

http://movingrightalong.typepad.com/moving_right_along/2008/03/your-tax-dollar.htmlYour Tax Dollars At Work!Love Thursday (which has been resurrected by Shutter Sister; thankyou, SS!) returns to Moving Right Along this week with a bang. A hugeringing bang.Look at the gift I have just been given. Well, maybe don't look ifyou get icked out by such things. On the other hand, if you enjoylooking

Future Planning Event- March 28th

2008-03-21T14:31:00.001-07:00

Date: 3/28/2008Time: 9:30:00 AMPresented by The Arc of Illinois and hosted by Blue Cap, this workshopwill address the unique needs that families have in planning for thefinancial and legal future of their relative with a developmentaldisability. Topics will include: Negotiating the Social Security Maze;Preserving Eligibility for Government Benefits through Proper EstatePlanning; Special Needs

March 29th seminar in Springfield

2008-03-21T09:29:00.001-07:00

Spread the word to families in Central Illinois… Presented by The Arc of Illinois and hosted by The Autism Program Planning for Children & Adults with Special Needs for Today & Tomorrow! Presented by Brian Rubin, J.D., Sherri Schneider, QMRP & Matt Cohen, J.D. The Hope Institute for Children and Families Learning Center Activity Room 15 East Hazel Dell

Welcome to SIBSNetwork

2008-03-18T09:29:00.001-07:00

Welcome all siblings that live in Illinois that have a brother or sister with a disability!After the first Sibling Conference (Sibling Connections) hosted by UIC in 2004 I was inspired to get siblings connected in Illinois. On AdultSibsNet siblings can discuss what it was like growing up with a sib who has special needs. Here we seek and share information about local services. We also discuss